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Topic Title: what happens if you stop using fin/propecia
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Created On: 07/15/2005 05:26 PM
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 07/15/2005 05:26 PM
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don
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i read that when you stop taking it, then any maintenance/regrowth will dissapear /fall out.

is this true, does anyone have any experience of this?
 07/15/2005 05:59 PM
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Peter Mac
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I experienced this with minox, but the same is true of Propecia.
If you start a medication, don't stop. Experiencing 3 years of hair loss in 6 months is not a fun experience!
 07/15/2005 06:31 PM
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OnAHairQuest
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I guess, when push comes to shove, that's the big drawback of any hairloss treatment Hey, but at least some of this stuff actually works!
 07/16/2005 02:16 AM
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Mojo_LA
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After 3 or 4 years, I stopped taking fin because of side effects. I stayed with the minox.

About 6-9 months later (about 2 months ago), I had a MASSIVE shed. Gobs of hair came out. It was not fun.

I have since started fin again, but this time at a much lower dose. I've also started other treatments like Nizoral, MSM and DMSO.

They say that recent hairloss is easier to get back, so I'm keeping my fingers crossed that what I lost during my recent shed will come back.

The bottom line is, if you're going to quit fin, you WILL lose hair. Most people take much more fin than they need to (for example, every other day is 90% as effective as every day), so I'd try cutting back before you quit. Take it once every 3 days (80% as effective) and if the sides go away, try every other day.

But every day really isn't necessary, and you can cut your dosage by 50%!
 07/18/2005 09:45 AM
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Jamz
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After I stopped using Propecia for about 3 months ago (16 months of use), I've experienced strange post-effects. Sort of a slight burning sensation at the left side of my scalp, feeling breezes (cold winds) more easily especially at the back of my head. I really don't know why I'm experiencing these phenomenons, and it's quite annoying. I feel that I never should have started Propecia, because of the common side-effects and these post-effects that are getting on my nerves. I never had this burning and breeze sensation before and while on Propecia, so I don't know what the cause might be. I really hope that it isn't an increase of DHT-levels, because I don't want to loose any more hair. I haven't gained/kept any hair while on Propecia, so why should it cause an increase in DHT-levels, sort of as the DHT is burning the hair follicles away :S

Quoting Peter Mac: "If you start a medication, don't stop. Experiencing 3 years of hair loss in 6 months is not a fun experience"

Why the heck should one lose more hair/faster after quitting Propecia, while still having hair, even if you haven't gained/kept anything?

Edited: 07/18/2005 at 09:46 AM by Jamz
 07/18/2005 10:22 AM
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brad04
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I would never stop. I never read anything positive when it comes to stopping anything especially minox.


-------------------------
1mg Propecia daily 11/21/2011
5% Minoxidil Nightly 11/21/01
 07/18/2005 11:02 AM
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worm
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I stopped a year ago after 7.5 yrs use and experienced a pretty bad shed a month or two after. Since then I started ozbrew and MSM and my hair hasn't really thinned at all. I am confident I will keep my hair for many years to come.

Alternatives do exist.
 07/18/2005 11:05 AM
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Peter Mac
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Quote

Why the heck should one lose more hair/faster after quitting Propecia, while still having hair, even if you haven't gained/kept anything?
it's an unfortunate event called upregulation. When you take Propecia your androgen receptors become more sensitive to DHT in the scalp. While on Propecia you don't notice this because the finasteride is blocking most of the DHT.

So when you stop taking Propecia your hair is now more sensitive to the DHT in your body AND you don't have Propecia protecting you so you experience a quicker rate of loss once you stop. We believe that over time your body will normalize your androgen receptors so the rapid rate of loss shouldn't continue. Merck's 5 year study chart confirms the upregulation hypothesis.

You may receive no benefit from Propecia and not experience upregulation. The study data chart shows us the vast majority of men receive a benefit from Propecia and experience upregulation. There are those that claim upregulation does not exist. To me, there is significant study data to show upregulation does indeed occur and is the reason for the rapid loss of hair following discontinuation of Propecia.



Edited: 07/18/2005 at 11:10 AM by Peter Mac
 07/18/2005 01:02 PM
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iamevilhomer
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I had been taking propecia for 3 years, and my hair was great, maybe a norwood 1.5, very thick all over and crown was fantastic.
July 2004 stopped taking it for personnal reasons, and within 3 months realised the massive mistake I had made. Got back on it at the start of October 2004, but even now i am still shedding loads.
My hairline has moved up at least a full inch on each side, and my right temple has all but disappeared.
My frontal third will be gone in the next few months if the shed does'nt stop as i can already see the big bare patches in my forelock?
My crown is now developing a small but noticeable bald spot.
After I shower and wash my hair, I can now see the full MPB signature, and can unfortunately see where I'm headed.
I am now getting on Minox & Nizoral also, and i am hoping the shed stops, and maybe improves so I can think about a small Fue to help my hairline as I really dont want strip.
I havent been out socialising this year, as I just hate not being able to style my hair anymore, and shaving my head is not an option as I'm already ugly enough as it is!!

My final word is if you start it, don't ever stop it as you never know how much it has actually been doing for you, certainly biggest mistake I ever made!
 07/18/2005 01:13 PM
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Peter Mac
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Quote

My final word is if you start it, don't ever stop it as you never know how much it has actually been doing for you, certainly biggest mistake I ever made!
time and time again we say patients stop medication, often for no reason! At least you had a reason. I had to stop medication due to financial reasons (laid off my job, had no money even for rent) but I still wish I could have found a way to keep on it. When someone starts propecia I suggest using it for a full 2 years with photos taken every three months to measure effectiveness. I believe very strongly in these two points. If you won't give it two years and won't take photos, don't bother starting.

 07/18/2005 01:19 PM
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DJB
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I will give it 2 years, but at 10.5 months its not looking good

Having said that very few hairs seem to come out, and the only ones that do are pretty much vellus ones, do you think that is relevant peter mac/anyone else with experience
 07/18/2005 01:42 PM
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pledge
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Peter Mac,

Correct me if I'm wrong, but your always used to say that results should be judged at 1 year, not 2 years. I only ask because I'm a day or two away from completing my first year on Propecia and I haven't seen the results I had hoped for. While I don't plan on stopping, it would be encouraging if the new consensus is that results really can't be judged before 24 months. In other words, would it be accurate to say that it takes 1 full year to judge whether Propecia is working for you, but if it is, that it takes 2 full years to achieve "best results". Perhaps this should be the new forum mantra.
 07/18/2005 02:25 PM
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Peter Mac
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Quote

Originally posted by: pledge
Peter Mac,



Correct me if I'm wrong, but your always used to say that results should be judged at 1 year, not 2 years. I only ask because I'm a day or two away from completing my first year on Propecia and I haven't seen the results I had hoped for. While I don't plan on stopping, it would be encouraging if the new consensus is that results really can't be judged before 24 months. In other words, would it be accurate to say that it takes 1 full year to judge whether Propecia is working for you, but if it is, that it takes 2 full years to achieve "best results". Perhaps this should be the new forum mantra.
I believe nw5's and 6's may achieve their best results in year 2. The reason is they have so much more vellous hair that may become thick enough to show good growth in year 2. Merck's chart is on those with mild baldness, not more severe like nw5 or nw6. Perhaps I should clarify, I think longer time periods are necessary for those with more advanced baldness. If you've been losing your hair for 8 years you can't expect miracle regrowth from propecia in just one year.

 07/18/2005 05:49 PM
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StillThinning
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Peter, this may seem like a stupid question but I want your answer on this. What are the signs I should look for when assessing whether or not my hair loss is halting. The reason I ask this is because it seems like common sense would say that fewer hairs should fall out and if you completely halted your hairloss then barely any should (BTW I am aware that 50-100 hairs fall out a day normally but I still believe its BS). Other people say that they continue to shed and still have success. What is your take on this?
 07/18/2005 11:16 PM
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Peter Mac
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Quote

Originally posted by: StillThinning
Peter, this may seem like a stupid question but I want your answer on this. What are the signs I should look for when assessing whether or not my hair loss is halting.
Just focus on photos. I've said this 1000 times, I'll say it 1000 more. Don't worry about how much you think you're shedding or how many hairs you see in your hands. Take photos every month and monitor your results. I have a light microscope that can be used to measure density in a given area. Most don't have one (they are only $300 btw) but a high quality digital camera with a macro setting provides excellent photos as well.
 07/19/2005 01:24 AM
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StillThinning
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Thanks for the reply, would you say that you have stopped your hairloss? Do you have photos?
 07/19/2005 05:11 AM
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Anatole
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Quote

Originally posted by: StillThinning
(BTW I am aware that 50-100 hairs fall out a day normally but I still believe its BS).



Good point : everybody looses 100 hairs a day normally but it is during the full 24 hours period (hairs on pillow, in the shower, at work etc). We, mbp sufferers, often shed 80-100 in the sink only while styling our hairs.....

It represents a lot more hairs on a 24 hours time.


 07/22/2005 08:46 PM
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dark_prophet82
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i stopped taking rogaine and 2months later i noticed i lost alot of hair in my forntal hairline not good trying to recover it back
 07/26/2005 04:41 PM
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don
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ok thanks for your info everyone
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